About to name it!

So for my new readers, if you're still wondering what HS is, you can get some info by clicking here what is tHiS. This is a link to my first entry on this blog where I pseudo explained HS, gave the jist of it anyway. If you want more detailed information here's where you click. Just beware of any images the web may show you. It's NOT pretty by any stretch. I will tell you it's not an STD, and it's not contagious.

Last time I blogged I had several bumpies in places we don't speak of. As of now I have 2 that are still hanging out and a new one that is deep and has yet to surface. One of the existing ones that's still hanging out...I'm considering giving it a name. Seriously. It's been here for a while now and is about the size of a large shooter marble, maybe a little bigger.

Large Shooter Marble

I'm out of Epsom Salts. The Tea Tree Oil is helping some, which is good. Just wish it would help more. I'm so done with this pain. We did a mini-lesson about aromatherapy in class last week. In that we took down some info about Tea Tree and other essential oils. There are several that I'm considering trying next. Who knows, maybe I'll finally find something that will help.
I tried an Arm & Hammer paste. Seemed to cool the area a bit if nothing else. Hey, I'll take all I can get at this point. I need something to work. I thought of this when I was doing my facial the other evening. You can make this paste and use it to draw out the venom after an insect or spider sting, so maybe it will work here. I'll keep trying.
I found someone online that was selling an ebook about how she CURED her HS. Ok, here are my issues with this.
                   * There is no cure for this condition. If this person has found a cure she needs to be contacting some medical research companies or something and selling her recipe to them.
                   * Why the heck wouldn't she just tell other HS sufferers how she "cured" her HS instead of trying to sell it for $17 a pop. GREED!
                   * All HS sufferers know that what may put me into remission may not put them into remission and visa verse. Some people have things that work for them while others are still searching for what will work.

That's what makes this condition so frustrating! I've gotten so much advice on what people have done I'd be blue in the face if I attempted to repeat it all. Some of the things worked and some didn't. The ones that did...only temporary. The ones that did....not on every bumpie. It's frustrating. Depressing. Painful. Irritating. Voodoo.  I try really hard to fight all of these feelings, sometimes it's all I can do to hide it from those around me. I don't want my kids to see me less than strong. Here I go with my music again. I try really hard to put it all in His hands, this is a battle I can't fight on my own. It is hard at times not to question Him, but I have to remember that He is the ultimate healer.

I want to be rid of this. I should be happy that my arm pit has not had any flairs in a while. I am happy about that. I wish I knew why or how that are went into remission. I don't think I did anything different to the last ones than I've done in the past or to the ones in places we don't speak of. Maybe there's just too much scar tissue and tunneling going on in the arm pit.

Ok, so my action plan is to pick up some new essential oils ASAP and try them. I'll report on those as I try them. Not sure when that will be. I don't know how I'm going to get gas for school this week.

Maybe this is why I'm having such a hard time healing the ones I currently have. Maybe I'm having too much stress going on, too much worry.  I'm serious about naming this one tho. Any suggestions?

***Added info***
I should really go back and read through my old posts more often. I just read I think I may be on to something , posted in October. I had forgotten about the experiment I was trying at that time. May have to bust out with that one again. I'll use that until I can get some more oils. Still need something for pain.

No Title Tonight.

Normally I title my blog entry before I begin typing it. There is so much going on right now I'm not sure what to call this one. New HS bumpies, new stress, waiting and wondering...the list goes on and on. Music isn't helping this time. Usually music is a very therapeutic thing for me. This time, not so much. I keep going back to Fist City although this is a different situation. I feel like beating the snot out of someone. But I'm a lover, not a fighter. =) Then I think about Every Rose Has It's Thorn If you click this link, you should understand why it is I chose this version. I'm listening to it now and in tears.

So Reagan is being tested for T1D (Type 1 Diabetes; AKA Juvenile onset diabetes) I am certainly beside myself. Ryan doesn't get it, but I'm preparing for the worst while hoping for the best. He thinks I'm being morbid and have convinced myself that he has it. Not true, I'm just getting ready for it. Just in case. Will it be the end of the world? No. Are there millions of kids who have T1D and lead happy normal lives? Yes. Are any of them MY baby? No.

So, yeah....stress level has been a bit over the limit recently. My emotions are running everywhere. I'm not sleeping well. I am in pain. I have new bumpies. I'm in a FML moment. I have to throw this in there really quick. Since I post a link to this blog on facebook and I have many new facebook friends who have most likely never read my blog or heard of HS (Hidradenitis Suppurativa) please note...I am not looking for pity. I don't want you to feel sorry for me. If you want to talk to me about anything you read here, please feel free to ask / say what you want by leaving a comment here, facebook comment or message, or even in person. But please, DO NOT PITTY ME OR FEEL SORRY FOR ME OR TREAT ME ANY DIFFERENTLY BASED ON WHAT YOU ARE / ARE ABOUT TO READ!
Now that that's covered.... So the HS has reared it's ugly head again. In places we don't speak of. This time there are multiple bumpies in this area, 1 on one side, 2 on the other side, and 1 on the back side. They are causing some serious pain. Again it hurts to walk, stand, sit, lay down...live... The Epsom salt baths seem to be offering minimal and temporary relief, which is so much better than nothing at all. I just wish it would do more. School should be interesting with this. Ugh! I'm trying Tea Tree oil applied directly, undiluted. One of them is a bit more sensitive than the others. It's not open or draining at this point but it BURNS!  I guess I should look at that as a good sign. Maybe it's getting ready to start draining. I hope it is.

Well, that's all I have tonight. Except that whole quit smoking thing I was doing so well at....well that's over. For now. I plan to try again. When things settle down a bit I will try again.